Hello, my name is Susan Gascoine and I am 70 years old. Welcome to my Web Page.
In April and May last year, I walked about 450km from Renmark to Adelaide the long way: along the River Murray to Morgan and Murray Bridge before heading over the hills into the city. You can find a record of that walk at http://renmark2016.susanstrides4cf.net/
This year, I am planning to walk about another 450km from Murray Bridge to Adelaide via Victor Harbour and many other towns of the Fleurieu Peninsular.
Like last year, my purpose in doing this walk will be to raise awareness of, and funds for continued research into treatment protocols for, Cystic Fibrosis (CF).
Research into finding a cure for CF is a cause very close to our family as our granddaughter, aged 10, suffers from this disease. So I want to raise at least $15,000 to help fund research into a lasting cure for CF as well as to help those who are already suffering from it.
Come and join me for any amount of time, be it an hour or two, a day or longer, either on the road or at an event. Your company and efforts will brighten my days, make the walking easier and more interesting, and be most gratefully appreciated.
If you can’t join me, a donation would go a long way toward helping. You can make a donation as follows:
|1) DEPOSIT DIRECTLY TO THE BANK ACCOUNT SET UP ESPECIALLY FOR MY WALKS|
|Susan Gascoine||ANZ Bank||015-310||4572 56348|
|2) VISIT MY EveryDayHero DONATION PAGE AT EVERYDAYHERO.COM|
Cystic Fibrosis (CF) is the most common inherited, life threatening disorder in Australia. More than 300 South Australians living with CF require significant daily medications and physiotherapy and frequent hospitalisation. It is a seriously life-limiting condition for which there is currently no cure. Despite major advances in the treatment of CF, only 50% of those born with this condition currently reach their late thirties. We need to have much more research into finding a cure for this terrible disease.
Cystic Fibrosis South Australia (CFSA) is the peak community not-for-profit organisation working with and for people with CF right across the state. Our mission is to assist everyone affected by CF to be well and live fuller lives. We provide information, support and guidance to people living with CF and their families. We advocate for services and systems that support the CF community and seek to raise awareness, understanding and funds for services and research.
Over 80% of CFSA income is from fundraising. CFSA receives no government funding.
Services that CFSA offers to its members include:
Cure4CF Foundation has one purpose: to find a cure for Cystic Fibrosis. We will not stop until CF means 'cure found'.
Established in 2009, Cure4CF Foundation, a South Australian based non-profit, has had the primary goal of finding a cure for Cystic Fibrosis (CF). It does this by raising and directing funds to promising avenues of research. To date, this has seen the Foundation support the work of the Adelaide CF Airway Research Group situated at the Women's Children's Hospital.
For the past 15 years, this research group has been working on their unique lentiviral gene therapy delivery process, with the aim of curing the airway disease caused by CF. This disease is the most common cause for early death.
The group employs a world-leading gene transfer approach. They use an especially modified virus to take a correcting gene into the airway, supplementing the defective gene that causes CF airway disease. The cell then takes over the job of producing the normal airway physiology.
The most exciting aspect of the work is that, although this approach should produce long term gene therapy treatments, it is also a potential cure for the airway disease in CF. It is designed to correct airway stem cells. This means that, as new airway cells are produced by the body, they will have the corrected gene operating within them. Success in this research project means that people living with CF airway disease will, for the first time, be able to live well and potentially be free of this disease.
Research undertaken by the team has shown that their gene transfer approach is successful in several animal models. The next challenge is to continue to develop their work to the point where they can commence trials of the gene transfer approach in cystic fibrosis patients. They have made a number of significant advances, particularly around the use of the actual gene transfer approach. Of particular importance was their work that showed the ability of the research team to produce a properly functioning expression of the gene that corrects the cystic fibrosis defect for more than 12 months. No other research group worldwide had been able to attain such extended gene correction.
This is what I am planning for 2017. Starting at Murray Bridge, I will go down the river to Meningie, back up and around Lake Alexandrina to Strathalbyn, Goolwa and Hindmarsh Island, through Victor Harbour end Encounter Bay to Yankallila, Myponga and Willunga, over to the beach (Aldinga), and wind my way back that way (kinda sorta!!) to Adelaide. I will make sure I am in Victor Harbour for Easter, and will finish at Peace Park, North Adelaide in the afternoon of April 30th.
My next walk :-)
My next walk will be about 420km
|WHEN:||March 25th to April 30th 2017|
|Details:||Departing Murray Bridge|
|Arriving at Peace Park, North Adelaide|
|GOAL:||RAISE $15,000 and better awareness of Cystic Fibrosis|